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End of life · JourneyWell field guide
What Changes Near the End of Life?
A gentle overview of common changes and how to get timely clinical guidance.
General educational information · Updated September 2026
The real challenge
Normal changes in the final phase can be unfamiliar and frightening, while new distress still requires clinical attention.
What may be happening
- People may sleep more, eat and drink less, communicate less, or become weaker.
- Breathing, circulation, awareness, and elimination may change.
- The pattern and timing vary; no list can predict exactly when the end will come.
What families can do now
- Ask hospice or the clinical team what they expect in this specific situation.
- Keep comfort supplies and contact numbers easy to reach.
- Let the person guide food, fluids, talking, and visitors when possible.
- Create a simple plan for caregiver rest and who to call.
Questions to bring to clinicians
- Which changes are expected, and which require an immediate call?
- What comfort medicines or equipment should be available?
- Who should we contact after hours or at the time of passing?
When JourneyWell support can help
Alongside hospice or clinicians, JourneyWell can provide non-clinical presence, caregiver guidance, and practical preparation.
Urgent and emergency note
Call the hospice or treating team promptly for new or distressing symptoms. Call emergency services if instructed or if there is an emergency and no comfort-focused plan directs otherwise.